Involving London


King’s Patient Safety and Service Quality Research Centre (PSSQ)

London (S) Comprehensive Local Research Network (CLRN)

NIHR Biomedical Research Centre for Mental Health, South London & Maudsley NHS Foundation Trust / Institute of Psychiatry, King's College London

NIHR CLAHRC for Northwest London

NIHR UCL/UCLH Comprehensive Biomedical Research Centre

Service User Research Enterprise (SURE), Institute of Psychiatry, King's College London

Research Design Service (RDS) London

SURF HCAI Service Users Research Forum

Thames Stroke Research Network



Biomedical Research Centre for Cancer, The Royal Marsden NHS Foundation Trust
Areas of London: SW London in terms of networks, serving the local populations of Surrey and SW London but are a tertiary referral centre for the whole of the UK.
Focus of Research: Cancer, Basic Scientific Cancer Research, Translational Cancer Research, Early Phase Clinical Trials, National Clinical Trials & Applied Research

Cardiovascular Biomedical Research Unit, Royal Brompton & Harefield NHS Foundation Trust
Julia Coffey, Public Involvement Co-ordinator
Areas: London and UK wide as national specialist cardiovascular service
Focus of Research:  “Heart Regeneration”. The aim of the Cardiovascular Biomedical Research Unit is to significantly increase understanding of the reasons for poor heart function in people living with a number of heart conditions, such as cardiomyopathy, arrhythmia, coronary heart disease and heart failure. A better understanding of the causes of poor heart function will help them to find more ways to improve health through: screening and prevention; diagnosis and predicting patient outcomes; and treatment. In order to achieve this their current research is focusing on genetics and heart imaging & biomarkers


Central and East London NIHR Comprehensive Local Research Network
Christina Christou, Administrative Officer,Central and East London CLRN
Area of London: Central and East London
Focus of Research: All areas

DeNDRoN - Dementias and Neurodengenerative Diseases Research Network
Mr Terry McGrath, PPI Coordinator

Areas of London: All London (and national)
Focus of Research: Alzheimer's disease, other dementias, Parkinson's disease, motor neurone disease, Huntington's disease


Diabetes Research Network, DRN
Martin Lodemore, Patient & Public Liaison Officer
Areas of London: The Diabetes Research Network covers the whole of Engalnd but in London it has 2 regional posts which cover the whole of London; North East London DRN covers North East and South East London, North West London DRN covers North West and South West London.
Focus of Research: Type 1 diabetes, Type 2 diabetes, Gestational diabetes, Other, rarer forms of diabetes (LADA, MODY, etc), Prevention strategies (including black and minority ethnic communities’ health issues, obesity, childhood obesity), Structured Education Programmes for diabetes (e.g. DAFNE, DESMOND, X-PERT Patient).

Guy's and St. Thomas' and King's College London Biomedical Research Centre
Sophie Auckland User Involvement Manager
Areas of London: the South East London boroughs of Southwark, Lambeth & Lewisham.
The work involves patients and the public from all regions depending on condition and research topic.
Focus of Research: Cancer (various types,) dermatology, rare and hereditary genetic conditions, transplantation (renal & heart,) heart conditions, stroke, asthma, allergies, oral heath (dental and mouth related cancers,) women's and children's health.

NIHR UCL/UCLH Comprehensive Biomedical Research Centre
Rosamund YU, PPI Manager
Areas: Tertiary referral centre for the whole of the United Kingdom, but location is North London.
Focus of Research: Cancer, Cardiovascular disease, Cellular and Gene Therapy, GI ahd Hepatology, Health Services Research,  Imaging, Infectious Diseases, Long term conditions,  Neurodiagnostics, Neurodegeneration,  NeuroImaging, Neural therapeutics, Oral health, Pain and Headache,  Womens Health, Respiratory, Anaethesia and Critical Care.


King’s Patient Safety and Service Quality Research Centre (PSSQ)
Alex Gaskell, Centre Manager
Areas: South East London and St Thomas’ Hospital, patients/public linked to King’s College Hospital, Guys and St Thomas and South London and Maudsley hospital. 
Focus of Research: NHS workforce issues (reducing bullying and harassment, looking at the impact of temporary contracts on staff attitudes and thus quality of patient care) Introducing innovative techniques in hospitals, particularly in maternity and medicine to ease the ‘patient pathway’ through the health care system. Risk – reducing incidents of risk across hospitals by analysing how risk incident data is currently used acted on by staff, coming up with models to reduce future incidents Organisational Governance – how do governance structures in hospitals affect safety and quality of care.


London (S) Comprehensive Local Research Network (CLRN)
Kami Paulson, Senior Communications Officer

Areas: South London,  Boroughs: Lambeth, Southwark, Richmond, Twickenham, Kingston, Sutton, Merton, Croydon, Bromley, Bexley, Greenwich and Lewisham
Focus of Research: Oral & Dental, Renal, Health Services Research, Dermatology, Public health, Reproductive health (assisted conception) research, Musculoskeletal, Nervous System Disorders, Ophthalmology, Paediatrics, Urogenital, Metabolic and endocrine, Hepatology Gastrointestinal, Immunology, Infectious diseases, Reproductive health & childbirth, Critical Care, Age & Aging Clinical Non-Malignant haematology, Genetics, Cardiovascular, Anaesthetics, Surgery, Injuries and accidents, Ear, nose and throat, Respiratory


NIHR Biomedical Research Centre for Mental Health, South London & Maudsley NHS Foundation Trust / Institute of Psychiatry, King's College London
Dr Felicity Callard, Senior Research Fellow

Service User Research Enterprise (SURE), Institute of Psychiatry, King's College London,
Diana Rose PhD, Senior Lecturer in User-Led Research, Co-director Service User Research Enterprise (SURE)
Areas: The BRC is the only specialist BRC in mental health in England and so covers the whole of England.  In practice, Service User Involvement is restricted to London – the whole of London. SURE’s work extends internationally as well as throughout England.  In terms of local research, it covers the South London and Maudsley NHS Foundation Trust, that is, the London boroughs of Southwark, Lambeth, Lewisham and Croydon.
Focus of Research:  The BRC for Mental Health carries out research in 6 themes that are focused around mental health problems and related conditions. These are: Mental disorders starting in childhood, Common mental disorders, Substance use disorders (‘addictions’), Aggressive behaviour, Dementia and related syndromes, Psychosis.


NIHR CLAHRC for Northwest London
Rachel Matthews, Programme Lead for Patient and Public Involvement
Areas: Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Kensington and Chelsea, and Westminster.
Focus of Research: All areas, with a focus on working to develop and promote a more efficient, accelerated and sustainable uptake of clinically innovative and cost-effective research interventions into patient care.



Research Design Service (RDS) London
Carol Porteous, User Involvement Lead

Areas: The RDS covers the whole of London
Focus of Research: RDS London Supports researchers from across London in all disciplines relating to applied health and social care research.


SURF HCAI Service Users Research Forum

Andrea Whitfield SURF Coordinator
Areas: SURF HCAI Service Users Research Forum covers the whole of England
Focus of Research: Cover all types of research related to Healthcare Associated Infections (HCAI)

Thames Stroke Research Network (TSRN) - Christopher Hille, Lead Research Practitioner
South East Stroke Research Network (SESRN) – Emma O’Connor, Lead Research Nurse
Areas of London: The Stroke Research Network covers the whole of England but in London it has 2 regional networks that work together to support stroke research activities. The area North of the river Thames is covered by the Thames Stroke Research Network, South of the Thames is covered by the South East stroke Research Network.
Focus of Research: The research activities the Stroke Research Network help to promote, organise and develop fall under 5 different categories. Many studies are themed according to whether they aim to prevent new or recurrent strokes (1. Prevention), or are related to the timing of the treatment – in the acute setting shortly after a stroke (2. acute), or trying to improve longer term improvement following stroke (3. rehabilitation). Research themes can also span the clinical care pathway to include prevention, acute and rehabilitation themes and these often take place in a specific setting (4. primary care). Finally, some studies aim to understand the underlying causes of stroke and it’s pathology (5. translational).