Involving London

Useful Links

Please find a list of useful links, Involving London cannot be responsible for the content of external organisations.
 
Alzheimer's Society
The Quality Research in Dementia (QRD) Network is a team of carers, former carers and people with dementia who play an integral part in the Society's research programme.
www.alzheimers.org.uk/research

CancerVOICES
CancerVOICES is a UK-wide network of people affected by cancer who are helping to shape the future of cancer, they are supported by Macmillan Cancer Relief
http://www.macmillan.org.uk/GetInvolved/CancerVoices/CancerVoices.aspx

Centre for Mental Health
The Centre for Mental Health (formerly Sainsbury Centre for Mental Health) is a charity that works to improve the quality of life for people with severe mental health problems.
http://www.centreformentalhealth.org.uk

Cochrane Consumer Network
Part of the Cochrane Collaboration, the Cochrane Consumer Network provides a coordinating network supporting consumers within Cochrane Groups
http://www.cochrane.org/consumers/about.htm

Department of Health
http://www.dh.gov.uk

DIPEx
The DIPEx website contains interviews of individuals personal experiences of a variety of health conditions. You can watch, listen or read the interviews. http://www.dipex.org/

INVOLVE
INVOLVE, the NIHR funded organisation that supports public involvement in NHS, public health and social care research. Their website has lots of useful information for those looking to get involved in research. www.invo.org.uk

Involvement Helpline
Milton Keynes Citizen’s Advice Bureau offers a specialist benefit and tax credit advice service called the Involvement Helpline.
http://www.miltonkeynescab.org.uk/documents/The_Involvement_Helpline1-9SRGYmmREQMBmV5D-1269420341.pdf

James Lind Alliance
A coalition of organisations representing patients and clinicians collaborating to confront important uncertainties about the effects of treatments.
http://www.lindalliance.org

MS Society Research Network
The MS Society Research Network (RN) was launched in 2002. It has 148 members - all people who have experience of living with MS or caring for a person with MS.
http://www.mssociety.org.uk/ms-research/get-involved-in-research/research-network

National Cancer Research Network
The National Cancer Research Network (NCRN) is a managed research network dedicated to providing a world-class health service infrastructure to support cancer research in England.
http://www.ncrn.org.uk

National Institute for Health and Clinical Excellence (NICE)
The National Institute for Health Clinical Excellence (NICE) makes recommendations on treatments and care using the best available evidence. There are opportunities for patient, carer and public involvement at a number of levels.
http://www.nice.org.uk/page.aspx?o=208935

National Institute for Health Research
The National Institute for Health Research is committed to establishing the NHS as an internationally recognised centre of research excellence through supporting outstanding individuals, working in world-class facilities, conducting leading-edge research focused on the needs of patients and the public. http://www.nihr.ac.uk/

NIHR CLAHRC for Northwest London
CLAHRC for Northwest London is an alliance of academic and healthcare organisations working to develop and promote a more efficient, accelerated and sustainable uptake of clinically innovative and cost-effective research interventions into patient care
www.clahrc-northwestlondon.nihr.ac.uk/

National Research Ethics Service (NRES)
The National Research Ethics Service works with colleagues in the UK to maintain a UK-wide system of ethical review that protects the safety, dignity and well being of research participants, whilst facilitating and promoting ethical research within the NHS.
http://www.nres.nhs.uk/

National Research Register
The National Research Register (NRR) is a database of ongoing and recently completed research projects funded by, or of interest to, the United Kingdom's National Health Service (NHS).
http://www.nihr.ac.uk/Pages/NRRArchive.aspx

People in Research
People in Research helps members of the public make contact with organisations that want to actively involve them in clinical research. For example this could be by helping to decide what gets researched or possibly carrying out part of the research. www.peopleinresearch.org/
 
RDS LONDON
RDS London has been set up by the NIHR to support researchers applying for research funding. They are part of the Involving London collaboration and are always looking for new patients and members of the public to assist them in their work and to link them with researchers. www.rdslondon.co.uk

SCIE Networks
SCIE works closely with a large number of organisations that help them in their work.
http://www.scie.org.uk/networks/index.asp

SURF
SURF was established to encourage greater public involvement in the field of infection research. For patients and the public SURF represents an opportunity to become more involved in the world of Healthcare Associated Infection (HCAI) research, and for the HCAI research community, SURF can act as a new resource providing researchers with a highly motivated pool of service users with a genuine interest in working to reduce HCAI.
http://www.hcaisurf.org/

UK Clinical Research Collaboration
The UK Clinical Research Collaboration (UKCRC)is a new partnership of organisations which was established in response to growing concerns that the UK was not fully realising the clinical research potential offered by the NHS. The goal of the UKCRC is to create a clinical research environment that will ultimately benefit patients and the public.
http://www.ukcrc.org/

UK Clinical Research Network
The UK Clinical Research Network (UKCRN) was established to provide support for clinical research and to facilitate the conduct of randomised prospective trials and other well-designed studies. It is tasked with developing a world class infrastructure to support clinical research in the UK.
http://www.ukcrn.org.uk/index.html